Featured links
This compendium of links highlights exemplary programs and resources produced by BOLD PHCOE EDD external partners that shed light on how the burden of Alzheimer’s Disease and Related Dementias (ADRD) is distributed, as well as strategies to advance care where the need is acutely felt.
Please click on the listed sections below to scroll to each section on this page.
ADRD and Public Health Data Sources
Alzheimer’s Association – Facts and Figures 2023 Report
Alzheimer’s Association – Promoting Healthy Aging to Reduce the Risk of Dementia: A Public Health Imperative (April 2023)
CDC – Updated BRFSS Infographics – Subjective Cognitive Decline and Caregiving by State (2021 data)
National Alzheimer’s Coordinating Center – NACC data request
National Institute on Aging (NIA) – Women’s Health and Aging: Expert Q&A
UsAgainstAlzheimer’s (UsA2) – Place & Brain Health Equity Data Brief
UsAgainstAlzheimer’s (UsA2) – National Alzheimer’s Disease Index (NADEX) Access Request
Minnesota Public Health Center of Excellence on Dementia Caregiving – State Registry Models for Tracking ADRD Metrics at the Population Level
NYU Population Health Department x RWJF – City Health Data Dashboard
NYU Population Health Department x RWJF – Congressional District Health Dashboard
Public Health Approaches to ADRD
Alzheimer’s Association State Plan Overview – Interactive Map
Healthy Brain Initiative (HBI) – State and Local Road Map for Public Health, 2023-2027 (4th Edition)
Healthy People 2030 – Data-driven national objectives to improve health and well-being over the next decade
International Association for Indigenous Aging (IA2) – Dementia Friends for American Indian and Alaska Native Communities
Public Health Reaching Across Sectors (PHRASES) – ASTHO Toolkit
*Population Science Methods and Approaches to Aging and Alzheimer’s Disease and Related Dementias Research – “Gain a thorough understanding of the determinants of health among aging populations, how disparities arise in diverse communities, and what can be done”
*Our Center has copies available to interested partners. Please reach out to our Center’s email for more information ([email protected])
State Approaches to Community Health Worker (CHW) Certification – ASTHO Interactive Map
UCSF Memory and Aging Center – Care Ecosystem for Persons with Dementia (PWD) and Their Caregivers
University of Washington – Cognition in Primary Care Program
USAging – Dementia Friendly America Sector Guides and Community Toolkit
Wisconsin Department of Health Services Division of Public Health – Wisconsin’s Early Detection Machine
Advancing Equity in ADRD Care
Alzheimer’s Association:
Dementia Friendly America (DFA) – Sector-Specific Guides to Support People with Dementia and Care Partners
International Association for Indigenous Aging (IA2) – American Indian, Alaska Native, & Culturally Inclusive Language in ADRD State Plans
International Association for Indigenous Aging (IA2) – Brain Health Resource Library for American Indian and Alaska Native communities
National Asian Pacific Center on Aging (NAPCA) – Connecting with AAPIs About Dementia: An Action Guide for Policymakers
National Task Group on Intellectual Disabilities and Dementia Practices (NTG) – Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel
National Institute on Aging (NIA) – Outreach, Recruitment, and Engagement (ADORE) Resources
National Institute on Aging (NIA) – Women’s Cognitive Health and Aging: Expert Q&A
UsAgainstAlzheimer’s (UsA2) – Brain Health Equity Nurse Fellowship
Wisconsin Alzheimer’s Institute – Guide to creating Memory Cafés
Advancing Capacity for ADRD Care and Caregiving
Administration for Community Living – Find your local Area Agency on Aging (AAA)
Alzheimers.gov – Finding Care and Support: Tips for People Living With Dementia
Benjamin Rose Institute on Aging and Family Caregiver Alliance – Best Practice Caregiving Guide
Centers for Medicare and Medicaid Services (CMS) – Supporting Adults with Intellectual and Developmental Disabilities (I/DD) and Their Aging Caregivers
Georgia Memory Net – developed in partnership between Georgia Department of Human Services and Emory University, to expand access to early and accurate diagnosis of Alzheimer’s disease and other dementias and to support those living with dementia, including caregivers.
Gerontological Society of America – GSA KAER Toolkit for Primary Care Teams
Milken Alliance (March 2023) – Guiding the Care Journey – Building Dementia Workforce and System Capacity through Care Navigation
NIA – Activities To Do With a Family Member or Friend Who Has Alzheimer’s Disease
Tennessee’s State Health Plan (SHP) – “In a significant stride toward inclusivity and addressing the needs of its aging population, aged 65 and above, Tennessee has integrated dementia and healthy aging, across the continuum, into the SHP.”
- Tennessee Priority Area #5 Older Adults: 1) Support and empower formal and informal caregivers of older adults. 2) Promote brain health across the lifespan while supporting individuals living with dementia.
Reducing Risk for ADRD
CDC – 10 Warning Signs of Alzheimer’s
Alzheimer’s Association – Unlocking Brain Health: Video Series on Dementia Risk Reduction by BOLD Public Health Center of Excellence
Alzheimer’s Association – Dementia education programs listed by location (USA)
ACL / AOA – Area Agencies on Aging (AAA) Elder Care Locator
Wisconsin ADRC – 6 science-backed Alzheimer’s disease prevention strategies
CDC – When to talk to your doctor about memory loss
American Geriatrics Society (AGS) – What medications should be avoided by older adults? (Beers criteria update 2023)
National Institute on Aging (NIA) – Beyond the brain: The gut microbiome and Alzheimer’s disease
National Alzheimer’s Project Act (NAPA) – National Plan to Address Alzheimer’s Disease – ASPE
American Academy of Family Physicians (AAFP) – Resources – Cognitive Care Kit
Advancing Reimbursement for ADRD Care
AARP Public Policy Institute (March 2023) – Report Finds Family Caregivers of Adults Provide $600 Billion in Unpaid Care Across the U.S.
Alzheimer’s Association – Cognitive Impairment Care Planning Guide: Reimbursable Clinical Visits
Association of State and Territory Health Officials (ASTHO) – State approaches to Community Health Worker (CHW) certification (June 2022)
Health Affairs (Feb 2023) – Payment For Comprehensive Dementia Care: Five Key Recommendations
Centers for Medicare & Medicaid Services – Conducting Annual Wellness Visits (AWVs)
NADRC (Resource Center) – Guide to Billing Codes for Dementia Services (Sept 2020)
Aging Services and ADRD Media (Audio + Video Series)
New York State’s Master Plan on Aging (MPA) – The MPA is designed to ensure that older adults and individuals of all ages can live healthy, fulfilling lives while aging with dignity and independence.
Video resources
Alzheimer’s Los Angeles – Early Memory Loss: Getting Help Matters Video Testimonials
Keys, Bags, Names, Words:
“Through a series of personal experiences, different people around the world share how they have adapted to a diagnosis of dementia. In turn, we see how they inspire artists and scientists to develop community-based solutions to foster connection and meaning.”
Click here to watch the trailer and find a showing near you
Dementia Care Aware’s video, A Brighter Future for Dementia Care, Early Detection Matters!
Click here to watch the video on the power of primary care as a catalyst for transformative change in the fight against dementia. Listen to dementia experts, advocates, and caregivers explain why this is the future of care.
International Association for Indigenous Aging (IA2) – Dementia 101 in American Indian & Alaska Native Communities Webinar
KU ADRC: “WHY – Big Answers about Early-Stage Dementia from Exceptional People” S
Podcasts
Dementia Care on Air – Working in the Clinic with Caregivers of People Living with Dementia (April 2023)
GeriPal Podcast – On Racism & Ageism: Ramona Rhodes, Sharon Brangman, Tim Farrell, and Nancy Lundebjerg (January 2023)
Gerontological Society of America (GSA) – Momentum Discussions Podcast
GSA on Aging – The Gerontologist podcast
Illinois Academy of Family Physicians (IAFP) – Brain Trust Podcast
What’s Next – Living Longer, Better, Smart Podcast, Episode 41: Caring for Caregivers Episode
Wisconsin Madison ADRC – Dementia Matters Podcast
- Dementia Matters Podcast – Lecanemab, Clinical Trials, And The Importance Of Clinical Meaningfulness with Paul Aisen, MD (June 2023)
- Take Care of Your MIND: Reviewing the MIND Diet for Healthy Brain Aging with Dr. Martha Clare Morris (May 2023)
- The National Strategy For Diversifying Alzheimer’s Research with Dr. Sarah Biber (May 2023)
- Disclosing Alzheimer’s Disease Biomarker Results In Diverse Populations with Dr. Annalise Rahman-Filipiak (April 2022)